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It takes heart …

I’m DAVE PROCTOR

In the summer of 2018 I attempted to run across Canada in record time meanwhile raise much needed funds and awareness for the Rare Disease Foundation. Being forced to stop just east of Winnipeg due to medical reason only deepens my desire to invoke change and get back on my feet to advocate further. Rare Disease reform and support requires immediate action and as long as I’m the face of Outrun Rare change is coming. Stay tuned, we are nowhere close to being done.

I am known as an elite runner and I like to think an all-around nice guy. My drive to break the current Guinness World Record to run across Canada stems from my deeply seeded passion to push boundaries and making impossible feats possible. Supporting the Rare Disease Foundation is a natural fit. My aim is to draw awareness to the needs and struggles that rare disease forces upon those it touches, and to raise funds to assist those focused on the important research that must continue.

My son Sam struggles daily with a rare disease called RECA, which makes simple movements difficult. Simply put, if he could run like his father he would never stop.

Our fundraising goal is $1 million which I know is a big task but equals the effort. We need your support –  volunteer, donate, or spread the word. We’re calling out to every Canadian, Runner, Ultra Runner, Athlete…  Believe me, I know the importance of every step – no matter how small.

We Need Your Help
To have a heart …

MEET MY SAM

In the winter of 2009 our lives were turned upside down. Our son Sam, then 2 years old, was hospitalized for the second time in 12 months with symptoms the medical community did not understand. It took 6 long years to receive a diagnosis that Sam has a very rare genetic disease called Relapsing Encephalopathy with Cerebellar Ataxia (RECA.)

This diagnosis was made possible via the dedication of countless scientists, researchers and fundraisers in the rare disease community. Since our diagnosis, peace and calm have flooded our lives, still understanding that at this present time there is no cure for Sam’s disease.

Sam’s disease is so rare, that he is one of only five people in the world to have it. Ataxia means lack of balance and co-ordination. This causes Sam’s speech to slur and he has to use a walker to walk to school. Feeding himself, bathing himself, going to the washroom — are all challenging for Sam.

Sam’s  in Grade 3, he goes to a regular school in Okotoks, and he’s just the greatest kid in the world.

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