Dave lives in Okotoks, Alberta (10 minutes south of Calgary). He and his wife, Sharon have three lovely and adventurous kids Julia, Sam, and Adele. He commutes to the city to practice at his busy Sports Massage Therapy clinic. In his spare time, he runs extreme distances. He holds the Guinness world record holder for furthest distance run on a treadmill in 24 hours (260.4kms) and the Canadian 24 hour record holder. This next year will transform his 24 hour specific training to the multi-day training model to challenge the 1991 Canadian record for 6 day event and ultimately the Cross Canada speed record.
“My skill set in this sport is mentally locking in and convincing myself that pain does not exist but replaced with joy and gratitude.”
With over 20 years experience across public, private and non-profit sectors, Stephanie manages all things communication, including media and community outreach.
“I wanted to be a part of what is sure to be history in the making. Dave is determined and inspired by the most powerful force of all – the love for his children. I’m thrilled to be a part of the team and the historic event.”
Boss Digital Media is focused on creating imagery and content for web based marketing that is iconic, impactful, memorable, and powerful.
“I am extremely fortunate to have the opportunity to work with Dave and so many wonderful people who have committed so much time and effort to help such an important cause.”
the rare disease foundation
Tyler is a founder and board member of the Rare Disease Foundation. He serves as RDF’s treasurer and and sits on their finance and research committees where he oversees research funding.
“I love that Outrun Rare has partnered with the Rare Disease Foundation. It’s an amazing way to build awareness of both the challenges and opportunites for families impacted by rare disease.”
First – ever Executive Director of the Rare Disease Foundation, the beneficiary of funds raised by Outrun Rare. David has a background in both business and non-profit.
“I’m excited to participate in and support Outrun Rare in any way possible. It will be the largest and most impactful fundraising effort ever attached to the Rare Disease Foundation.”
Isabel connects families and patients through Peer 2 Peer Resource Networks and social media. She speaks at conferences and writes about the importance of patient partnership in research and healthcare.
“I’m thrilled about the OutrunRare project. Connected diverse communities for a common cause makes me happy. It’s a great team filled with motivated and big-hearted people.”
James Radke, PhD
James Radke has been involved in the rare disease community ever since his daughter was born – 20 years ago. Soon after her birth, a diagnosis of craniosynostosis led Jim to reassess his career priorities. Today, his daughter is a healthy young woman attending the University of Victoria and Jim has created two companies focusing on rare conditions. The first was a U.S.-based website geared towards educating doctors about rare disease research. The second is a Canadian-based company focused on helping patient advocacy groups function more effectively. Jim has travelled the world and met thousands of rare disease advocates, patients, researchers, and caregivers. And each one had a unique story to tell that continues to inspire him to advocate for any person pursuing better ways to manage people with rare diseases. He is a former board member of the Canadian Organization of Rare Disorders (CORD) and is currently a board member of the Rare Disease Foundation.
I’m Jen Whitehead, I have 20 years experience as a Production Coordinator in the Film Industry, which is how I fit into the team, I bring my logistics and location coordinating to this team to get Dave across the Country. I’ve known Dave and Sharon for 14 years, and all of their kids for their entire lives.
“Dave’s love for his family is what has inspired me to join this team. His desire to break the record and run across a Country that I am proud to call my home is just an added bonus. I’m excited to be a part of a team where we are all focused on the same goal…to help our amazing crazy ultra marathoner friend raise awareness for the Rare Disease Foundation.”
A friend of Dave’s and Controller at Azimuth Capital Management, Janet is assisting with the financial reporting for the Outrun Rare Team.
“Dave is such an inspiration to me & everyone around him. I’m thrilled to play a part in supporting Dave & his Team on his epic journey across Canada to raise awareness and money for the Rare Disease Foundation.”
Deanna is a passionate runner who was drawn to the Outrun Rare cause after losing her own brother to a rare disease. She is involved with tracking Dave’s whereabouts during his epic run, and is coordinating the collection of all of the data pertinent to Dave’s competition for the Guinness World Record for the Fastest Man to Cross Canada on Foot.
It takes one nut to start a movement, and this movement is going to be a big one! Dave’s fight for his son will cause a huge impact for those 1 in 12 Canadians affected by a rare disease and I am honoured to be a member of the incredible team supporting this endeavor.
Bio coming soon
Daniel is a Live event Production Coordinator with 19 years of working in the Calgary area. Daniel tries running cause he really likes short shorts, and sweating.
“We all have talent and abilities and it is my honour to lend my small amount of talent and abilities to help Dave achieve his goals”
With a passion for running and several marathons behind her, Tracy is excited and honoured to be a part of the Outrun Rare team. She will be assisting in the round-up of sponsorships for Dave.
“This project inspired me from day one. The Rare Disease Foundation needs support and funding. There are 3 million Canadians suffering from Rare Diseases right now. I feel truly blessed to be part of something so special.”
A friend of Dave’s and local Calgary ultra-runner. Terry helps to round up sponsors and attention for the Outrun Rare event.
“As a mother of two, the Outrun Rare cause is very close to my heart. I have two healthy girls and wish the same sense of knowledge and security for all parents. I find Dave’s willingness to challenge what’s possible as inspiration to push myself to new distances and challenges.”
Marsha Crossman & Jon Paradowski
Marsha and Jon are both fellow ultra-runners. With plenty of charity experience, Marsha organizes and volunteers at events as well as on-boards others to get involved, believing everyone has unique talents to contribute. Jon strives for a positive, healthy lifestyle and hopes to bring his positive energy to encourage Dave on his run.
“We’re proud to be a part of this historical event and inspired by the dedicated group of people behind it. ‘Unless someone like you cares a whole awful lot, nothing is going to get better. It’s not.'”
Also a fellow runner, Julia will be assisting in Special Events as Dave makes his way across Canada.
“I believe a single person can make a significant difference.”